Sunday, June 22, 2008

The Story Unfolds

Sent: Sunday, June 22, 2008 7:31 PM
Subject: Prayer Requests And My Next Trip to Indianapolis / Bloomington / What's Happening Now & What's Next?

All,

I will be making another road trip this Wednesday and so I am putting out another request for any prayer requests you may have. Last time, I received three requests and I have added them to my prayer request list (Word document) that I use for my daily prayer time. This trip will start about 6 a.m. CST and I should get back home around 9 or 10 p.m. So, please, if you have any requests you would like to share with me, please let me know.

I was asked to provide some more details on my pre-treatment appointments and exactly what all this stuff is for. So, there will not be much new information in this email except for treatment details so feel free to stop reading now or just skim over the remainder of the email. But, if you are one of those folks who have the time and interest in some of the details, keep reading. (There are some older emails also below in case you missed one, or two, or three!) J

Most of you know that on Tuesday, June 17th , I drove to Bloomington, IN to get prepped for my body cast (more about that later). This Wednesday, June 25th, I will drive to Indianapolis, IN for my “gold seed” implant at noon and then drive to Bloomington, IN for my 3 p.m. appointment for a bunch of CT scans. This is supposed to be my last trip before I start my 44 treatments tentatively on July 21st but that has not been confirmed yet.

So, here are some details on this whole Proton Radiation procedure. This last Tuesday, I got fitted for my body cast. The body cast is made out of very strong plastic with several “belts” which buckle and strap you in. Think of it as a straight jacket without the trip to the mental institute. This plastic cast is bolted to a board. Then, for each treatment, I “slip” into this cast and get bolted in. The idea here is that your body is in the same exact position for each of the radiation treatments. It is critical that only the prostate area get the proton treatments. I am also sure this is used to insure that I am not moving around during the Proton radiation treatment. My understanding is that this board is moved onto the treatment table and into position for my treatments.

The body cast was made via what I would compare to a papier-mâché process. They took what looked like white, first aid type wrap, soaked it in some special fluid, and then wrapped it around my body from chest to just above my knees so I looked kind of like a mummy. Then, they had me step back into the small wooden box and then tilted me back and down onto the examining area to “dry”. After 5 minutes, he cut off my body cast. They will send this away to have the sturdy, touch body casing molded.

This Wednesday, I get my gold seed implanted in the center of my prostate. My understanding of this is that this will allow them to have a consistent reference point as I am being treated. This is also used when I get all my CT scans on Wednesday. I was told that the CT scans are used to design the mold that will be used to make the metal filter that will be inserted into the line that delivers my Proton radiation. The mold is designed to the contour of my prostate. Again, the idea is to treat only my prostate and not the surrounding areas / organs.

On my last trip, I was told I would have 2 days of consultation before my 44 treatments start. So, this will push me into a 10th week of treatments since I will receive daily treatments, Monday through Friday. The treatments are supposed to take only 5 minutes and the whole process is supposed to be around 30 minutes (excluding any waiting room time). I have also been told that generally there should not be any side affects except I may see some redness in the treatment areas. My treatments will be administered through one of my sides in my pelvic area. Then, I will be rotated 180 degrees and the treatment will be repeated a second time. I may also experience some tiredness and constipation. So, I will be trying to address that through my diet.

The idea of the proton treatment is to basically kill EVERY cell in the prostate along with 5 centimeters surrounding the prostate. The goal is to insure that every cancer cell is killed. I was told that after about 29 treatments, they will make another proton radiation mold which will be smaller in size so that a smaller area will get the daily radiation.

I hope that information provided enough details to answer some of the questions you may have had but had not asked. Let me know if you have any other questions about this process or the treatments. Also, feel free to pass this information along or refer anyone to me that may be dealing with prostate issues.

God Bless!

Kim

WARNING – DETAILS ON MY DAILY TREATMENT BELOW CONTAINS GRAPHIC INFORMTION ON BODY FUNCTIONS. SOME OF YOU MAY WANT TO SKIP THIS PART!

The daily treatment process is kind of interesting. I have to drink 16 ounces of liquids one hour before each treatment. The idea is to fill the kidneys with fluid so they will drop down away from the prostate. But the really fun part is when they insert a balloon into my rectum and fill it with water. How would you like to have that job??? The inserting, not filling part! (Try not to think of this when you have your next water balloon fight.) The idea here is to push the prostate away from the rectum to avoid any rectal burning. (I AM ALL FOR THAT!!!) I was telling a guy at church about this today and he asked if this was something like what he experienced that last time he ate at Taco Bell??? J I said, yeah, something like that. After reading about this process, I was very impressed in that they has seemed to put quiet a lot of thought into keeping the different organs safe from the proton treatments.

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Colonoscopy - Written by Dave Barry

So here's the story.

I called my friend Andy Sable, a gastroenterologist, to make an appointment for a colonoscopy. A few days later, in his office, Andy showed me a color diagram of the colon, a lengthy organ that appears to go all over the place, at one point passing briefly through Minneapolis.

Then Andy explained the colonoscopy procedure to me in a thorough, reassuring and patient manner. I nodded thoughtfully, but I didn't really hear anything he said, because my brain was shrieking, quote, 'HE'S GOING TO STICK A TUBE 17,000 FEET UP YOUR BEHIND!'

I left Andy's office with some written instructions, and a prescription for a product called 'MoviPrep,' which comes in a box large enough to hold a microwave oven. I will discuss MoviPrep in detail later; for now suffice it to say that we must never allow it to fall into the hands of America's enemies.
I spent the next several days productively sitting around being nervous. Then, on the day before my colonoscopy, I began my preparation. In accordance with my instructions, I didn't eat any solid food that day; all I had was chicken broth, which is basically water, only with less flavor. Then, in the evening, I took the MoviPrep.

You mix two packets of powder together in a one-liter plastic jug, then you fill it with lukewarm water. (For those unfamiliar with the metric system, a liter is about 32 gallons.) Then you have to drink the whole jug. This takes about an hour, because MoviPrep tastes - and here I am being kind - like a mixture of goat spit and urinal cleanser, with just a hint of lemon.

The instructions for MoviPrep, clearly written by somebody with a great sense of humor, state that after you drink it, 'a loose, watery bowel movement may result.' This is kind of like saying that after you jump off your roof, you may experience contact with the ground.

MoviPrep is a nuclear laxative. I don't want to be too graphic, here, but: Have you ever seen a space-shuttle launch? This is pretty much the MoviPrep experience, with you as the shuttle. There are times when you wish the commode had a seat belt. You spend several hours pretty much confined to the bathroom, spurting violently. You eliminate everything. And then, when you figure you must be totally empty, you have to drink another liter of MoviPrep, at which point, as far as I can tell, your bowels travel into the future and start eliminating food that you have not even eaten yet.

After an action-packed evening, I finally got to sleep. The next morning my wife drove me to the clinic.. I was very nervous. Not only was I worried about the procedure, but I had been experiencing occasional return bouts of MoviPrep spurtage. I was thinking, 'What if I spurt on Andy?' How do you apologize to a friend for something like that? Flowers would not be enough.

At the clinic I had to sign many forms acknowledging that I understood and totally agreed with whatever the heck the forms said. Then they led me to a room full of other colonoscopy people, where I went inside a little curtained space and took off my clothe s and put on one of those hospital garments designed by sadist perverts, the kind that, when you put it on, makes you feel even more naked than when you are actually naked.

Then a nurse named Eddie put a little needle in a vein in my left hand. Ordinarily I would have fainted, but Eddie was very good, and I was already lying down. Eddie also told me that some people put vodka in their MoviPrep.. At first I was ticked off that I hadn't thought of this is, but then I pondered what would happen if you got yourself too tipsy to make it to the bathroom, so you were staggering around in full Fire Hose Mode. You would have no choice but to burn your house.
When everything was ready, Eddie wheeled me into the procedure room, where Andy was waiting with a nurse and an anesthesiologist. I did not see the 17,000-foot tube, but I knew Andy had it hidden around there somewhere. I was seriously nervous at this point. Andy had me roll over on my left side, and the anesthesiologist began hooking something up to the needle in my hand.. There was music playing in the room, and I realized that the song was 'Dancing Queen' by ABBA. I remarked to Andy that, of all the songs that could be playing during this particular procedure, 'Dancing Queen' had to be the least appropriate.

'You want me to turn it up?' said Andy, from somewhere behind me. 'Ha ha,' I said. And then it was time, the moment I had been dreading for more than a decade. If you are squeamish, prepare yourself, because I am going to tell you, in explicit detail, exactly what it was like.

I have no idea. Really. I slept through it. One moment, ABBA was yelling 'Dancing Queen, feel the beat of the tambourine,' and the next moment, I was back in the other room, waking up in a very mellow mood. Andy was looking down at me and asking me how I felt. I felt excellent. I felt even more excellent when Andy told me that it was all over, and that my colon had passed with flying colors. I have never been prouder of an internal organ.

ABOUT THE WRITER: Dave Barry is a Pulitzer Prize-winning humor columnist for the Miami Herald. On the subject of Colonoscopies... Colonoscopies are no joke, but these comments during the exam were quite humorous..... A physician claimed that the following are actual comments made by his patients (predominately male) while he was performing their colonoscopies:

1. 'Take it easy, Doc. You're boldly going where no man has gone before!

2. 'Find Amelia Earhart yet?'

3. 'Can you hear me NOW?'

4. 'Are we there yet? Are we there yet? Are we there yet?'

5. 'You know, in Arkansas, we're now legally married.'

6. 'Any sign of the trapped miners, Chief?'

7. 'You put your left hand in; you take your left hand out...'

8. 'Hey! Now I know how a Muppet feels!'

9. 'If your hand doesn't fit, you must quit!

10. 'Hey Doc, let me know if you find my dignity.'

11. 'You used to be an executive at Enron, didn't you?'

12. Now I know why I am not gay.'

And the best one of all.

13. 'Could you write a note for my wife saying that my head is not up there?'



Inspirational Stories

She jumped up as soon as she saw the surgeon come out of the operating room She said: 'How is my little boy? Is he going to be all right? When can I see him?' The surgeon said, 'I'm sorry. We did all we could, but your boy didn't make it.'

Sally said, 'Why do little children get cancer? Doesn't God care any more? Where were you, God, when my son needed you?'

The surgeon asked, 'Would you like some time alone with your son? One of the nurses will be out in a few minutes, before he's transported to the university.'

Sally asked the nurse to stay with her while she said good bye to son She ran her fingers lovingly through his thick red curly hair. 'Would you like a lock of his hair?' the nurse asked. Sally nodded yes. The nurse cut a lock of the boy's hair, put it in a plastic bag and handed it to Sally.

The mother said, 'It was Jimmy's idea to donate his body to the University for Study. He said it might help somebody else. 'I said no at first, but Jimmy said, 'Mom, I won't be using it after I die. Maybe it will help some other little boy spend one more day with his Mom.' She went on, 'My Jimmy had a heart of gold.. Always thinking of someone else. Always wanting to help others if he could.'

Sally walked out of Children's Mercy Hospital for the last time, after spending most of the last six months there. She put the bag with Jimmy's belongings on the seat beside her in the car.

The drive home was difficult. It was even harder to enter the empty house. She carried Jimmy's belongings, and the plastic bag with the lock of his hair to her son's room.

She started placing the model cars and other personal things back in his room exactly where he had always kept them. She lay down across his bed and, hugging his pillow, cried herself to sleep.

It was around midnight when Sally awoke. Lying beside her on the bed was a folded letter. The letter said :

'Dear Mom,

I know you're going to miss me; but don't think that I will ever forget you, or stop loving you, just 'cause I'm not around to say 'I Love You' . I will always love you, Mom, even more with each day. Someday we will see each other again. Until then, if you want to adopt a little boy so you won't be so lonely, that's okay with me. He can have my room and old stuff to play with. But, if you decide to get a girl instead, she probably wouldn't like the same things us boys do. You'll have to buy her dolls and stuff girls like, you know. Don't be sad thinking about me. This really is a neat place. Grandma and Grandpa met me as soon as I got here and showed me around some, but it will take a long time to see everything. The angels are so cool I love to watch them fly. And, you know what? Jesus doesn't look like any of His pictures. Yet, when I saw Him, I knew it was Him. Jesus, Himself, took me to see GOD! And guess what, Mom? I got to sit on God's knee and talk to Him, like I was somebody important. That's when I told Him that I wanted to write you a letter, to tell you good bye and everything. But I already knew that wasn't allowed. Well, you know what Mom? God handed me some paper and His own personal pen to write you this letter I think Gabriel is the name of the angel who is going to drop this letter off to you.. God said for me to give you the answer to one of the questions you asked: where was He when I needed Him?' 'God said He was in the same place with me, as when His son Jesus was on the cross. He was right there, as He always is with all His children.

Oh, by the way, Mom, no one else can see what I've written except you. To everyone else this is just a blank piece of paper. Isn't that cool? I have to give God His pen back now He needs it to write some more names in the Book of Life. Tonight I get to sit at the table with Jesus for supper. I'm sure the food will be great.

Oh, I almost forgot to tell you. I don't hurt anymore the cancer is all gone.. I'm glad because I couldn't stand that pain anymore and God couldn't stand to see me hurt so much, either. That's when He sent The Angel of Mercy to come get me. The Angel said I was a Special Delivery! How about that?

Signed with Love from God, Jesus & Me.

When Grandma Goes To Court

When Grandma Goes To Court
Don't Jack With This Lady!